Gastrointestinal and pancreatic neuroendocrine tumors, also referred to as gastroenteropancreatic neuroendocrine tumors (NETs), are rare tumors formed from cells that have roles in both the endocrine and the nervous system.1 The rarity of neuroendocrine tumors makes them difficult to diagnose and contributes to a lack of available resources and information about the disease.
the United States are living
of NET patients worry about their disease getting worse.6
of NET patients frequently feel frustrated as a result of their disease, from the time that they first start experiencing symptoms.6
of NET patients do not feel that their treatment doctors understand the frustrations they have with their NETS and the symptoms.6
of patients are actively seeking out information about NETS and learning about available treatment options.6
of patients living with NETs wish there was more information and resources available about their disease.6
of patients prefer to consult online resources first when they have questions about their NETs, before speaking with their doctor.6
In response to this need, Ipsen Biopharmaceuticals, Inc. launched KnowYourNETs.com to serve as an additional resource for people living with neuroendocrine tumors. This website provides patients and their caregivers with access to tools and information about this rare disease.